Thank you for learning more about Sturge-Weber Syndrome and the giving page dedicated to Alex Zaman.  Since 2014, Alex's family and friends have donated $5,500 to support Sturge-Weber syndrome research. Thank you!  

For those of you who are less familiar with Alex, he was born with Sturge-Weber syndrome (SWS) in 2007.  He has suffered from hundreds of stroke-like seizures, about 25 laser treatments for his skin port-wine stains, and has been hospitalized twice with intractable seizure clusters. He has cycled through six anticonvulsants and has finally improved recently while under the care of his team of neurologist, pediatrician, ophthalmologist, teachers and therapists. As a lovable and caring 16 year-old, Alex is the epitome of hope and a gift to his parents.  

One of Alex's neurologists, Dr. Anne Comi, a Professor at Johns Hopkins University School of Medicine & Kennedy Krieger Institute, spent her entire career studying Sturge-Weber. In 2012, she and her team identified the cause of Sturge-Weber. They have since leveraged their discovery for a better understanding of the syndrome, earlier diagnosis and more effective treatment.  We believe that their research will lead to a better quality of life, and ultimately a cure.  Like many families with SWS kids, we are urgently trying to help The Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute raise funds to proceed with the necessary clinical trials.  

We hope you will consider supporting Dr. Comi and others who have dedicated themselves to unraveling SWS so that Alex will have a bright future. 

To donate now, please click on the SUPPORT ME button above and make an online donation to support Sturge-Weber syndrome research. 

Thanks from Alex, Ee Ching, Zia, and Zoe.